Tag: Bladder Exstrophy

Julia had another Urology follow up appointment yesterday and everything continues to look good. She was weighed without her Spica cast and she is now 6 lbs. 10 oz. Yay for growing! The dressing around her SP tube was also changed (see picture). Dr. Borer was keeping Julia calm, Lauren was changing the dressing, and Rosemary was assisting them both.  Those three people have been our Boston family and I don’t know how we’d get through all of this without them. 

We will have about two more follow up appointments before the next big step. Next Thursday, the 27th her cast will come off (YAY!) and Julia will have her ultrasound and x-ray to check on the progress of her bladder healing. If all looks good we will do a few days of testing her bladder by plugging the SP tube. If her bladder does what it should and urine goes where it should, the tube comes out. And that means we get to come HOME! 

We of course will be coming back to Boston as often as Dr. Borer needs us to for follow ups, but we’ll be home. Our fingers are crossed the first weekend in May will be when Julia gets to finally see South Carolina. Please keep her in your thoughts and prayers during our home stretch with this visit. xoxo, Tori

Thursday was a big day for Julia. Her urologist, Dr. Borer, gave her bladder a test to hold urine and also to see if the urine would come out the old fashioned way. He plugged her SP tube so it would stop draining and left it like that while we went to get her Spica cast re-lined. When we arrived back we checked for urine in her diaper which was inconclusive because she had pooped (she is a little poop machine). Dr. Borer then checked to see if her bladder had held urine during that break and it did (see picture)! Yay for pee! 

After the Urology appointment we all took Julia to her pediatrician appointment. We wanted to make sure we were also keeping up with all of the normal newborn check ups. Her doctor was happy to see Julia doing so well and admired Dr. Borer’s work on Julia’s bladder closure surgery. During that time we saw a little trickle of pee come out, hooray! 

Her next urology follow up is on Tuesday and I imagine we will do another test. She will also have an opthomology appointment next week, and audiology before heading home. Prayers that all of her appointments continue to go well and that she continues to heal are appreciated. We cannot wait to bring her home to Charleston!