Surgery Update 1

Thank you to everyone who is praying and thinking of our sweet Julia today! ❤

This morning was an early start for all of us. We had to check in at 6am for a 7:30am surgery. I was grateful to be able to stay with Julia until the last possible minute. I walked her to the operating room and held her hands while she fell asleep.

When Julia had her bladder repair surgery a year ago, we learned that she does not have a clear airway to be intubated. It took several hours for them to intubate her before anything started.

This time around we were prepared and Sean and I reminded everyone that we were told Julia needed an ENT to do the intubation. This morning the anesthesiologist told me they were going to try a new device to assist in the intubation before bringing in an ENT.

I questioned this as multiple attempts can cause swelling, but the anesthesiologist said if we can do this it will make future procedures for Julia a little easier. Well, it worked! The first try went in without a problem.

We receive updates from a nurse every 90 minutes, which is wonderful. So far Dr. Borer (Urology) did his exam and stopped by to tell us that Julia has healed beautifully from her surgery last year and looks great.

Plastic surgeon number 1, Dr. Taghinia, worked on her left hand and foot. For those of you who don’t know, Julia was born with her left middle and ring fingers fused together, and her left toes do not all lay flat. Her third toe actually points down which was the focus of her surgery today.

Dr. Taghinia came to see us when he was done and told us that everything went smoothly. Her two fingers are now separated and he did some work with the tendon attached to the third toe to bring it up. Julia is now rocking two pink casts.

Next up is Dr. Mulliken, plastic surgeon number 2. He specializes in facial reconstruction and is working on two parts. The left corner of her mouth is not a tight corner, it is more rounded which causes her to leak some while eating. He is doing a commissure repair of her mouth.

The other part of her surgery is on her nose. She has a strip of skin that runs down the middle of her nose that he is working on bringing together. That part of the surgery is currently in progress so we will update everyone with how it went when we can.

When she is all done she will spend the night in the ICU and possibly be discharged tomorrow, though we will wait and see how she feels. Thank you again for the thoughts and prayers! xoxo, Tori

Hello Boston

The time has come. Our next visit to Boston is here. Julia’s second surgery is tomorrow.

Our little family of five packed up our mini van and spent three days driving to Boston. We are checked in and ready for Julia’s big day.

Today we had her preop appointment to go over the plan for tomorrow. We also met with Julia’s facial plastic surgeon one more time before the surgery. He is the one you’d want if you were in need of anything, and he’s a pretty great doctor if you ask me.

While we were at the hospital we decided to pop in on our favorite department for a quick hello as we’re not scheduled to see them until later next week. We were lucky that they were in between patients and could say hello to us.

We will post updates when we can. Thank you all for keeping Julia in your thoughts and prayers, especially tomorrow. ❤️

Also, thank you to everyone who was able to help us with this trip via our GoFundMe site. Your support means the world to us! xoxo, Tori

This Time, Together

One year ago Sean and I were preparing to leave for Boston for the birth of our littlest princess, Julia. We packed what we could into two big suitcases and showered Kaitlyn and Claire with hugs and kisses before leaving them behind. This was one of the hardest things we’ve ever had to do. We were very lucky in that Kaitlyn and Claire were able to visit three different times while we were in Boston, but not having our family together was tough on all of us.

We are preparing to head back to Boston in April for another surgery for Julia. While this time will only be one month verses the two and a half months we were gone last year, we cannot bear to have our little family separated again.

At the beginning of the year Sean and I decided to pull Kaitlyn and Claire from their school and begin homeschooling them so that they could join us in Boston this time. Knowing we will all be together – and Julia will have her two big sisters with her (she absolutely adores them) – makes leaving home and our support system so much easier.

With quite a few things different this time around we have decided to set up a GoFundMe page. Over the last year we have had many family and friends ask how they could help us. If you are able, we are asking for help financially for our next visit. I cannot thank you all enough for following our little story, and for keeping us in your thoughts and prayers! xoxo, Tori