It’s hard to believe little Julia has already been with us for one whole month. She has brought so much joy to our family already!
Today I was finally able to hold her again. Having not held her since Tuesday morning before her surgery, I was one happy Mommy! We have started feeding her bottles again too. We are starting slow which is why she is now rocking that lovely orange feeding tube in her right nostril. It was a little bit of a rough start for her yesterday, but she did amazing today. If she keeps it up that tube will come right back out.
Her two big sisters came to visit over the weekend with Grandma & Grandpa. They were such big helpers. Kaitlyn and Claire held her hand, talked to her, and made sure the doctors and nurses took excellent care of her. The visit went by way too quickly, but thankfully we only have to wait a week before they come back. This time bringing Papito and Mimi with them.
Julia is recovering nicely from her surgery. We are happy to report they were able to extubate her this morning and she is currently breathing very nicely on her own. Seeing her looking around, breathing on her own, and wiggling was the highlight of our day.
The team at Boston Children’s Hospital has been great with giving Julia the best possible care. She is currently hanging out in the Neonatal Intensive Care Unit while they monitor her breathing, vitals, and get her eating again.
Another exciting report, our little family is back together for the weekend. Kaitlyn and Claire were thrilled to see their baby sister, and were great visiting in the NICU. They both asked the doctors and nurses great questions and comforted Julia while she was getting examined.
Next up is transferring Julia to a regular floor sometime this weekend, then looking at removing a couple of the tubes from her surgery later next week. If all of that goes well then we’ll be able to bring her “home” with regular check-in’s for a few weeks before finally bringing our new little princess HOME to South Carolina.
Thank you again for keeping her in your thoughts and prayers! It’s certainly helping! xoxo, Tori
This has been one of the longest days ever! Dr. Borer, the best pediatric urologist there is, came to see us a little after 9pm to let us know everything went really well. A couple of hours after that we were finally able to see our baby girl. Now comes the long road of recovery. Please keep Julia in your prayers while we take one day at a time. Thank you! xoxo, Tori