Did you hear? Boston Children’s Hospital was ranked #1 again by U.S. News & World Report. Not only that, but the Urology team was ranked #1 too! We certainly aren’t surprised. In case you can’t tell from our posts, we may have fallen in love with Boston Children’s Hospital. There are some great superstars providing outstanding care to families just like ours.

Speaking of superstars. We have our very own superstar living with us. After Julia’s surgery Dr. Borer approached us about being interviewed for their website to help inform other families about bladder exstrophy, and hopefully help parents make a decision about care for their child. Sean and I of course said yes. Well the story was just published today. You can view it in two different places on Boston Children’s Hospital website. The more in depth story is underĀ Patients’ Stories, and the other is under their Greatest Children’s Stories. Feel free to share these stories on your social media sites. The more we share them the more informed people will be, and hopefully parents like us will feel a little better knowing that they are not alone.


We sure did miss our Boston family this past month and a half. It seems like we’ve been home so much longer. Guess with the girls getting out of school for the Summer and moving into our dream home that’s to be expected. 

Yesterday Sean, Julia, and I hopped on a plane and headed to Boston for some follow up visits. This was Julia’s first time flying and she was a pro. She had her first appointment yesterday afternoon with opthamology. If you remember in one of my previous posts I kind of complained about how they were nearly impossible to see (no pun intended 😉). Well now that we have been to a couple of appointments, we forgive them. Julia’s doctor has been great. This time he did another full exam of both eyes for any changes and had us get an ultrasound done of them too. Things seem to be about the same. We’re still not sure exactly what she can see out of her left eye, but it responded to light so we’re going to try patching her right eye for thirty minutes a day to help strengthen it and see what develops. Her doctor also spoke very highly of MUSC’s pediatric opthamology department so hopefully they will live up to his praise. 

Today was a very busy day for Julia. We started out with a visit to dermatology. Her bottom has still been healing from the horrible diaper rash she developed while in the hospital after her bladder closure surgery. Yes, her poor bottom has been trying to heal since the end of March. While it does look way better there are still a few areas trying to fully heal. We didn’t really receive any new information but I wanted to make sure there wasn’t anything more we could do since we don’t see our Charleston dermatologist until next week. We are looking forward to finally meeting her as we have heard only good things about her. 

After dermatology we headed to radiology. Julia needed to get a DMSA injection for a later scan to check on her kidneys. This was definitely the worst part of her day. The technician had a hard time finding a good vein on Julia. After finding one that may work it ending up not letting the dye go in so they had to try again. The second time did work but boy was Julia ticked off. We haven’t seen her that mad since her PIC line was removed after her surgery. After some cuddles we moved to another area of radiology to get an ultrasound done of her kidneys then another area to get an X-ray of her abdomen. Poor baby was worn out after all of that. Sean and I grabbed a quick bite to eat in the cafeteria, then decided to wait in the urology waiting area until our next appointment, the DMSA scan. 

In case you haven’t been paying attention, we really like the urology department. Especially The Big Three. At first Sean asked if we should go wait in the radiology waiting area for the hour we still had, but I said I’d rather go hangout in urology in case we could say some more hellos. Well good thing we did because all three of our favorite people were available to see us. We got Julia’s vitals done and went ahead with her exam which she passed with flying colors. We then went off to radiology one more time for the final scan. 

What we thought would be a quick 10 minute scan, which they preferred her asleep for, ended up being a thirty minute scan. And this was when Julia should be getting hungry, not tired. Luckily when they swaddled her she started sucking on her pacifier and fell asleep. We then went back to urology to review all of the imaging she had done. Everything looks great. She still has some reflux to her kidneys, but nothing to be concerned about. Julia has continued to heal nicely and her bladder continues to do what it should. After lots of hugs and trying to get them to move to Charleston, we headed to the airport. 

We are now back in Charleston with our big girls and ready to get some rest. Thank you Dr. Borer, Rosemary, Lauren, & team for a wonderful visit. We’ll see you in September. 

Busy bees

It’s hard to believe we have been home for two weeks. It feels like it’s been so much longer. We have been busy bees since coming home to Charleston. As some of you know we sold our house at the beginning of the year and moved in with my parents. Everything worked out so perfectly with us needing to move to Boston for two months. While in Boston Sean and I were in communication with our realtor off and on, and would occasionally look at houses for sale. We found a few we liked while in Boston, but our favorites were sold by the time we got home. Sean and I decided to casually see what the market had to offer the weekend we came home. We ended up finding a house we really liked and contacted our realtor about possibly putting in an offer. The market is hot right now so we did not want to lose a house that fit our wish list. Well thankfully she talked us down and gave us a nice list of houses to look at. Sean and I narrowed her list of over twenty listings down to three and looked at them the Sunday after coming home (crazy right?). Well, our realtor listened to our wish list because she found the perfect home for us. We put an offer in that Sunday and were surprised when it was accepted only a few hours later! So we are now in the process of buying our next home. Yay!

It is also the end of the school year so we are busy with Kaitlyn and Claire finishing third grade and kindergarten. You always hear that your children will grow up fast, but you don’t realize how fast until you actually have your own. Kaitlyn had her end of year musical theatre performance of The Jungle Book where she played King Louie wonderfully, and Claire just had her kindergarten graduation where she had a solo she performed in front of everyone. These two girls are growing into such smart, talented, confident girls, and we love experiencing every minute of it.

Julia has been doing a great job adjusting to her new home. It is a lot different than our quiet little apartment in Boston. She has her entire family surrounding her, talking to her, snuggling her, singing to her, playing with her, and we wouldn’t trade it for the world. We will keep you updated as we move into our new home andĀ on Julia’s upcoming follow up appointments. Thank you all again for your continued thoughts and prayers. We are so lucky to have you all! xoxo, Tori