Julia had another Urology follow up appointment yesterday and everything continues to look good. She was weighed without her Spica cast and she is now 6 lbs. 10 oz. Yay for growing! The dressing around her SP tube was also changed (see picture). Dr. Borer was keeping Julia calm, Lauren was changing the dressing, and Rosemary was assisting them both. Those three people have been our Boston family and I don’t know how we’d get through all of this without them.
We will have about two more follow up appointments before the next big step. Next Thursday, the 27th her cast will come off (YAY!) and Julia will have her ultrasound and x-ray to check on the progress of her bladder healing. If all looks good we will do a few days of testing her bladder by plugging the SP tube. If her bladder does what it should and urine goes where it should, the tube comes out. And that means we get to come HOME!
We of course will be coming back to Boston as often as Dr. Borer needs us to for follow ups, but we’ll be home. Our fingers are crossed the first weekend in May will be when Julia gets to finally see South Carolina. Please keep her in your thoughts and prayers during our home stretch with this visit. xoxo, Tori
So happy and relieved that things are progressing well with little Julia.
My prayers are with you.